Lectures & Events

Balancing Privacy, Autonomy, and Scientific Progress: Patients’ Rights in the Use of Electronic Medical Records for Non-Treatment Purposes
Law-Medicine Center
Sharona Hoffman
Edgar A. Hahn Professor of Law; Professor of Bioethics; Co-Director of the Law-Medicine Center
APR 5, 2013
9:00 AM - 5:00 PM
Moot Courtroom (A59)

This program will focus on the impact of the transition from paper medical files to electronic health records outside of the clinical setting. Computerization will enable researchers, public health officials, and others to obtain unprecedented amounts of data that can be used to achieve significant medical and social advances. However, a tension exists between maximizing the benefits of secondary (non-clinical) use of electronic health information (EHI) and deferring to patient preferences regarding what is done with their EHI. Secondary data use thus raises complicated questions about patient autonomy, privacy protections, and the degree to which the potential to promote the common good should supersede concerns about risks to individuals. This program will bring together a distinguished group of experts to explore these fascinating issues.

Health Matrix: Journal of Law-Medicine, one of the most prestigious health law journals in the country, will publish the articles generated by the symposium (Volume 23, Issue 2, due out Spring 2013).
Speaker Information
Barbara Evans
University of Houston
Professor of Law
Co-director, Health Law & Policy Institute
Director, Center on Biotech

Malia Fullerton

University of Washington
Associate Professor of Bioethics and Humanities

Anil Jain
SVP & Chief Medical Information Officer at Explorys, Inc.

Sharona Hoffman
Professor of Law
Professor of Bioethics
Co-Director, Law-Medicine Center

Dr. David Kaelber
Chief Medical Informatics Officer
Assistant Professor, Case Western Reserve University School of Medicine

Andy Podgurski
Case Western Reserve University

Suzanne Rivera
Case Western Reserve University
Associate Vice President for Research
Assistant Professor of Bioethics

Marc Rodwin
Professor of Law

Mark Rothstein
Director of the Institute for Bioethics, Health Policy and Law

Nancy Staudt
Academic Director of the Schwarzenegger Institute for State and Global Policy
Professor of Law and Public Policy

Nic Terry
Professor of Law
Co-director of the William S. and Christine S. Hall Center for Law and Health

9:00-9:30 – Introduction and Overview
Sharona Hoffman, Case Western Reserve University

9:30-10:00 – EMR use for research and public health
Dr. David Kaelber, (Case Western Reserve University School of Medicine, MetroHealth)

10:00-10:30 – EMR use by FDA for post-marketing surveillance
Barbara Evans, (University of Houston Law Center)

10:30-10:45 – Break

10:45-11:15 – Leveraging De-identified Patient Data in the Cloud – Opportunities & Challenges
Anil Jain, (Explorys)

11:15-11:45 – EMR data as public property
Marc Rodwin, (Suffolk University Law School)

11:45-12:45 - lunch

12:45-2:15 - Privacy & autonomy panel
Nic Terry (Indiana University Robert H. McKinney School of Law), Mark Rothstein (University of Louisville Louis D. Brandeis School of Law), and Suzanne Rivera (Case Western Reserve University)
2:15-2:30 - break

2:30-3:00 – EMR data quality
Andy Podgurski, (Case Western Reserve University)

3:00-3:30 – Causal inference and the challenges of making sense out of data
Nancy Staudt, (University of Southern California Gould School of Law)

3:30-4:00 Leveraging EMRs for genetic research
Malia Fullerton,(University of Washington School of Public Health)

4:00-4:15 wrap-up

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